Bioethics and the Experiences of Hansen’s Disease Survivors

Material type: 図書

Author: Kondo, Marikoほか

Publisher: InTech

Publication date: 2016-12-29

Material Format: Digital

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Note (General)：: Historically, Hansen’s disease patients suffered from discrimination because their physical features changed due to the bacterium Mycobacterium leprae...

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Material Type: 図書
Title: Bioethics and the Experiences of Hansen’s Disease Survivors
Author/Editor: Kondo, Mariko
Mori, Kazuo
Nomura, Hiroshi
Kadowaki, Hanako
Watanabe, Makiko
Doi, Akemi
Shima, Sayaka
Author Heading: Kondo, Mariko
Mori, Kazuo
Nomura, Hiroshi
Kadowaki, Hanako
Watanabe, Makiko
Doi, Akemi
Shima, Sayaka
Publication, Distribution, etc.: InTech
Publication Date: 2016-12-29
Publication Date (W3CDTF): 2016-12-29
Periodical title: Bioethics - Medical, Ethical and Legal Perspectives
Pages: 69-105
Text Language Code: eng
Subject Heading: stigma
Hansen’s disease
bioethical principles
wisdom
human caring
Target Audience: 一般
Note (General): Historically, Hansen’s disease patients suffered from discrimination because their physical features changed due to the bacterium Mycobacterium leprae (M. leprae) and made them “ugly” in the eyes of society. Former Japanese governments saw them as a national disgrace and forced them to reside in leprosaria. Since the law requiring isolation continued after the silver bullet was developed, survivors could not leave the leprosaria and return to society. Currently, survivors’ average age is 82 and they live in 13 national sanatoriums. When they pass away, the history of Hansen’s disease in Japan will end, so we must record their experiences. We conducted qualitative and inductive studies with survivors. In this chapter, we reconstruct them from the perspective of bioethics and propose several theories surrounding them: (1) How former leprosaria and medical administrations in Japan threatened bioethical principles; (2) the wisdom of aging survivors, who lived through extreme situations, and what real restoration of their rights might look like; and (3) the ethical dilemmas of how we will care for the survivors—who have multiple severe sequelae—until they all pass away. Finally, we will intro
Source: https://ousar.lib.okayama-u.ac.jp/files/public/5/55166/20170523152900801162/9789535128472_5.pdf
https://ousar.lib.okayama-u.ac.jp/files/public/5/55166/20170523152900801162/9789535128472_5.pdf
Access Restrictions: 限定公開
Rights (production): https://creativecommons.org/licenses/by-nc-nd/4.0/deed.ja
Related Material (DOI): 10.5772/65574
Data Provider (Database): 国立情報学研究所 : 学術機関リポジトリデータベース（IRDB）（機関リポジトリ）
https://irdb.nii.ac.jp
Original Data Provider (Database): 岡山大学 : 岡山大学学術成果リポジトリ