Assessment of self-/parent-reported quality of life in Japanese children with haemophilia using the Japanese version of KIDSCREEN-52.

• Material Type: 博士論文
• Title: Assessment of self-/parent-reported quality of life in Japanese children with haemophilia using the Japanese version of KIDSCREEN-52.
• Author/Editor: Furuichi, Yasuko; Nogami, Keiji; Yada, Koji; Nezu, Satoko; Obayashi, Kenji; Saeki, Keigo; Kurumatani, Norio; Nakajima, Mitsuru; Kinoshita, Seiji; Shima, Midori
• Author Heading: Furuichi, Yasuko; Nogami, Keiji; Yada, Koji; Nezu, Satoko; Obayashi, Kenji; Saeki, Keigo; Kurumatani, Norio; Nakajima, Mitsuru; Kinoshita, Seiji; Shima, Midori
• Publication, Distribution, etc.: John Wiley & Sons Ltd.
• Publication Date: 2020-03
• Publication Date (W3CDTF): 2020-03
• Alternative Title: 日本における小児血友病患者の日本語版KIDSCREEN-52を用いたQOLの自己評価および保護者による評価
• Periodical title: Haemophilia
• No. or year of volume/issue: 26 2
• Volume: 26
• Issue: 2
• Pages: 243-250
• ISSN (Periodical Title): ISSN : 1351-8216
• Degree grantor/type: 奈良県立医科大学
• Date Granted: 2020-06-30
• Dissertation Number: 甲第747号
• Degree Type: 博士（医学）
• Text Language Code: eng
• Subject Heading: children; haemophilia; health-related quality of life; self-assessment; survey
• Target Audience: 一般
• Note (General): type:Thesis; Introduction: Assessing health-related quality of life (HRQOL) is critical for providing comprehensive clinical care to patients with haemophilia. HRQOL in individuals with similar cultural backgrounds should be compared using internationally standardized, generic questionnaires. Aim: To evaluate self-/parent-assessed HRQOL in Japanese children and adolescents with haemophilia A or B. Methods: Children and adolescents aged 8-18 years were enrolled. The haemophilia group comprised families with haemophilia, and the control group comprised those without chronic illness. HRQOL was assessed using the self-/parent-reported questionnaire KIDSCREEN-52, the Japanese version. The Oslo 3-Item Social Support Scale was investigated. Results: The questionnaire was completed by 36 families in the haemophilia group and 160 parents and children in the control group. Haemophilia children aged 8-12 years had lower scores for 'moods and emotions' than control children; the parents had lower scores in the haemophilia group than in the control group for 'moods and emotions', 'social support and peers', and 'school environment'. No significant differences in HRQOL were observed between both groups of adolescents aged 13-18 years or their parents. Neck-shoulder pain was associated with a low psychological state, including 'self-perception', but other joint pains did not affect the outcomes of the HRQOL indices. Social support weaknesses were associated with low physical and psychological states, whereas unexpected hospital visits identified low values for 'self-perception', 'autonomy', and 'school environment'. Conclusion: Proactive mental and clinical care in haemophilia families, especially with young children, will foster a better environment for patients and their parents and ease concerns about progress in haemophilia.; 博士（医学）・甲第747号・令和2年6月30日; © 2020 John Wiley & Sons Ltd.; This is the peer reviewed version of the following article: [https://onlinelibrary.wiley.com/doi/full/10.1111/hae.13945], which has been published in final form at [https://doi.org/10.1111/hae.13945]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.; identifier:Haemophilia Vol.26 No.2 p.243-250 (2020 Mar); identifier:13518216; identifier:http://ginmu.naramed-u.ac.jp/dspace/handle/10564/3754; identifier:Haemophilia, 26(2): 243-250
• Source: fulltext; http://ginmu.naramed-u.ac.jp/dspace/bitstream/10564/3754/1/01%e7%94%b2747%e6%9c%ac%e6%96%87%e3%81%ae%e8%a6%81%e6%97%a8.pdf; http://ginmu.naramed-u.ac.jp/dspace/bitstream/10564/3754/2/02%e7%94%b2747%e5%af%a9%e6%9f%bb%e8%a6%81%e6%97%a8.pdf; http://ginmu.naramed-u.ac.jp/dspace/bitstream/10564/3754/6/03%e7%94%b2747%e6%9c%ac%e6%96%87.pdf
• Access Restrictions: インターネット公開
• Related Material (DOI): 10.1111/hae.13945
• Periodical Title (NCID): AA11030122; https://ci.nii.ac.jp/ncid/AA11030122
• Data Provider (Database): 国立情報学研究所 : 学術機関リポジトリデータベース（IRDB）（機関リポジトリ）; https://irdb.nii.ac.jp
• Original Data Provider (Database): 奈良県立医科大学 : 奈良県立医科大学機関リポジトリ GINMU