Quality of life and palliative care needs of patients with Niigata Minamata disease : A complete survey after 50 years since the disaster

• Material Type: 博士論文
• Title: Quality of life and palliative care needs of patients with Niigata Minamata disease : A complete survey after 50 years since the disaster
• Author/Editor: Sakai, Sayuri
• Publication, Distribution, etc.: 新潟大学
• Publication Date: 2015-03-23
• Publication Date (W3CDTF): 2015-03-23
• Alternative Title: Quality of life and palliative care needs of patients with Niigata Minamata disease : A complete survey after 50 years since the disaster; 新潟水俣病患者のQOLと緩和ケアニーズ : 発生後50年の全数調査より
• Degree grantor/type: 新潟大学
• Date Granted: 2015-03-23
• Date Granted (W3CDTF): 2015-03-23
• Dissertation Number: 甲第3997号
• Degree Type: 博士（医学）
• Conferring No. (Dissertation): 甲第3997号
• Text Language Code: eng
• Subject Heading: quality of life; palliative care; Niigata Minamata disease; bioethics; complete survey
• Note (General): Background: Minamata disease (MD) is caused by the ingestion of a large amount of fish or shellfish contaminated with MeHg included in industrial wastewater. In 1965, a number of cases were found along the Agano River in Niigata Prefecture in northern central Japan, which were collectively designated as “Niigata Minamata disease.” Patients with MD suffer from a set of complicated pains accompanied by various signs and symptoms. They also have mental and social pains, including loss of identity, stigmatization that lead leads to the refusal of friendship and marriage, and isolation in the local community. However, few studies have investigated the care and prevention measures required to relieve the symptoms of patients with MD. Aim: The objective of this survey was to investigate the symptoms, pain, and suffering experienced by patients with Niigata Minamata disease as well as their QOL and coping strategies. Design and setting: The survey was designed as a complete study of patients with MD accessible to the local government of Niigata Prefecture and that City. Results: The average score of the study subjects in the World Health Organization Quality of Life 26 (WHO/QOL-26) was considerably lower than that of the general population, while being female and having an occupation correlated with higher scores for some domains and/or overall QOL scores. The symptoms perceived by the subjects distressing in their daily lives included numbness in limbs, physical pain, disturbed sensory systems, limb dysfunctions, and fatigability. The measures commonly taken to relieve these symptoms included using medicines, taking a bath/going to springs, and maintaining warmth. The common emotional support included interpersonal relationships, emotional fulfillment, self-discipline in daily life, and bodily health. Those certified as having MD showed no significant difference in any domains and overall QOL. Conclusions: Palliative care providers should extend their targets for non-cancer palliative care and develop approaches for MD-specific total pain.; 学位の種類: 博士（医学）. 報告番号: 甲第3997号. 学位記番号: 新大院博（医）甲第643号. 学位授与年月日: 平成27年3月23日; 新大院博（医）甲第643号; 開始ページ : 1; 終了ページ : 18
• Persistent ID (NDL): info:ndljp/pid/9425152; https://dl.ndl.go.jp/pid/9425152
• Collection: 障害者向け資料
• Collection (Materials For Handicapped People:1): テキストデータ
• Collection (particular): 国立国会図書館デジタルコレクション > デジタル化資料 > 博士論文; https://dl.ndl.go.jp/collections/A00014
• Acquisition Basis: 博士論文（自動収集）
• Date Accepted (W3CDTF): 2015-07-01T13:17:09+09:00
• Date Created (W3CDTF): 2019-08-05
• Format (IMT): application/pdf
• Access Restrictions: 国立国会図書館内限定公開
• Service for the Digitized Contents Transmission Service: 図書館・個人送信対象外
• Availability of remote photoduplication service: 可
• Periodical Title (URI): http://hdl.handle.net/10191/32281
• Data Provider (Database): 国立国会図書館 : 国立国会図書館デジタルコレクション; https://dl.ndl.go.jp